Action Area Five: Bolster the infrastructure needed to support an equitable and durable health equity research ecosystem

  • Example in action

    To bolster or reform the HSKS infrastructure, Funders can start creating the conditions (i.e. funding, networks, infrastructure, etc.) to support an alternative health equity research enterprise; Academia can work with accrediting bodies to formalize curriculum requirements related to health justice research practices at scale; Journals can translate innovations into concretized author guidelines and push for adoption through national and international committees (e.g., ICMJE) and at the publisher level; and Non-profits can reduce dependence on external institutions' (e.g., governmental and academic) research and data infrastructure by investing in internal or coalition-shared data sovereignty capacity (e.g., dedicated data/research staff, shared governance functions, data management systems and technical assistance partnerships).

  • Funders
    • Fund/provide backbone support for coordinated networks, coalition building
    • Support or launch the infrastructure for a new journal run as a public good with no fees and no profit expectations
    • Redesign funder applications to be more accessible, inclusive of communities, as opposed to rigid, nonrelational transactional processes
    • Start creating the conditions (i.e. funding, networks, infrastructure, etc.) to support an alternative health equity research enterprise
    • Provide technical support and training opportunities for needs across the field
  • Academia
    • Situate senior leaders to serve as long-term champions of health equity principles and practices, with resources and dedicated staff to ensure it’s sustained and institutionalized, rather than a one-time effort
    • Work with accrediting bodies to formalize curriculum requirements related to health justice research practices at scale
  • Journals
    • Acknowledge and offset the burden of peer reviewing and serving on editorial boards by compensating these roles
    • Translate innovations into concretized author guidelines and push for adoption through national and international committees (e.g., ICMJE) and at the publisher level
  • Non-profits
    • Establish community data stewardship and governance practices (e.g., data governance policies, community review processes, data-sharing agreements, and decision-making protocols) to strengthen community ownership of data and ensure information is collected, used, interpreted, and shared in ways that reflect community priorities
      • Create community-owned data dashboards and shared measurement systems that allow residents, non-profits, funders, researchers, and policymakers to monitor progress toward community-defined outcomes in real time (monitoring and accountability infrastructure, to the extent possible, should be accessible and owned by the community)
    • Reduce dependence on external institutions' (e.g., governmental and academic) research and data infrastructure by investing in internal or coalition-shared data sovereignty capacity (e.g., dedicated data/research staff, shared governance functions, data management systems and technical assistance partnerships)
    • Establish standardized agreements, frameworks, or processes for data ownership, access, use, and dissemination when partnering with researchers, funders, and other institutions (e.g., standing data-sharing agreements or templates, memorandums of understanding or agreement, funding pass-through agreements, free, prior, and informed consent processes, and community approval processes) to promote transparency, accountability, and equitable use of community knowledge

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